Angello

Story by his mom, Nancy

When Angello was born on July 18, 2003, we had no idea there were any health complications, especially having undergone several sonograms during pregnancy.  Shortly after his delivery, we were informed by the nursery that he was "turning blue" and that his oxygen readings were dangerously low.  Through the blur of emotions and questions, we felt completely helpless and terrified.  After a few hours, the staff at our local hospital decided to rush Angello to Children’s Hospital so that he could get the appropriate emergency medical care.  We were numb; not only was our baby suffering many medical challenges that we did not understand, but now he was being taken from us to another location.

The next day at Children's, many members of the staff, including nurses, surgeons, and social workers, took time to explain his complex condition.   Angello was born with Hypoplastic Left Heart Syndrome, a cleft palate, and a non-functioning left kidney.  With his heart condition we were given three choices -- await a heart transplant; have Angello undergo a three-part surgical repair; or take him home and make him comfortable in his last hours.  We were told that awaiting a heart transplant was long and arduous, not always resulting in a positive outcome.  The professionals gave us the facts, statistics, and information to make our best choice.

We opted for surgery.  Angello had his first open heart repair at 7 days of age.  He had his second when he was 8 months old.  The third and final repair occurred in August of 2005 when Angello was 2.  With each procedure came many complications but always hope. 

Our young son has endured approximately 10 heart catheriterizations, a cleft palate repair, feeding tube procedures, and many other non-invasive medical treatments, in addition to three open heart surgeries.

One underlying theme recurred through all our “dark days” (as they became known to us) -- how utterly fortunate were we that we lived so close to this amazing medical facility, Children’s Hospital.  In my humble opinion, the surgeons and doctors are brilliant, the nurses so knowledgeable, and the social work staff are just incredible.  They all played key roles in saving Angello’s life.

Other staff members like the cashier in the cafeteria, or the receptionist at the front desk, seemed to recognize we were downright beat up and exhausted from this situation and would give a kind smile or gentle encouragement.

Children's Hospital has given us the greatest gift and we are honored to tell Angello's story.  He is truly a miracle child and brings great happiness to anyone in his path of life.